Saudi Arabia |
High |
Medical Service Department- Birth Defect Registry (MSD-BDR) |
2010 |
Hospital-based |
ICBDSR |
- |
Yes |
2 years |
Major |
ICD-BPA |
- |
- |
https://bit.ly/2XHWSNm |
Argentina |
Upper-middle |
National Registry of Congenital Anomalies of Argentina (RENAC) |
2009 |
Hospital-basesd |
ICBDSR, ReLAMC |
300 (40%) |
No |
Hospital discharge |
Major |
ICD-BPA |
Live birth and Stillborn |
Yes |
https://bit.ly/3bCBph4 http://dx.doi.org/10.5546/aap.2013 |
Australia |
High |
Australian Congenital Anomalies Monitoring System (ACAMS) |
1981 |
Population-based |
- |
- |
Hybrid |
Vary among different collections |
Major |
ICD-BPA and AM |
Live birth and Stillborn |
Yes |
https://bit.ly/2LqbnTQ https://bit.ly/2Ke5JmZ |
Brazil |
Upper-middle |
Sistema de Informações sobre Nascidos Vivos (Sinasc) |
1999 |
Population-based |
ReLAMC |
3.000 (100%) |
Yes |
Hospital discharge |
Major |
ICD |
Live birth |
No |
https://bit.ly/3nId7VA |
Canada |
High |
Canadian Congenital Anomalies Surveillance System (CCASS) |
1966 |
Population-based |
ICBDSR |
330 (98%) |
- |
1 month |
Major |
ICD-CA |
Live birth and Stillborn |
Yes |
https://bit.ly/3bEVm6U https://bit.ly/2LMLUDV |
Chile |
High |
Registro Nacional de Anomalías Congénitas de Chile (RENACH) |
2016 |
- |
ReLAMC |
220 |
- |
- |
- |
- |
- |
- |
https://bit.ly/38Gs1Hq https://bit.ly/3qyZ7iq |
China |
Upper-middle |
Birth Defects Surveillance System for the Collaborative Project-China (BDSS-China) |
1992 |
Population-based |
- |
260 |
- |
42 days |
Major |
ICD |
Live birth and Stillborn |
Yes |
https://doi.org/10.1002/ajmg.c.31690 https://doi.org/10.1007/s12519-011-0326-0 |
China |
Upper-middle |
Chinese Birth Defects Monitoring Network (CBDMN) |
1988 |
Hospital-based |
- |
1.380 (8.51%) |
No |
7 days |
Major |
ICD |
Live birth, Stillborn and Termination of pregnancy |
Yes |
https://doi.org/10.1007/s12519-011-0326-0 https://doi.org/10.1046/j.1365-3016.2003.00478.x |
Colombia |
Upper-middle |
Vigilancia de los Defectos Congénitos |
2010 |
Population-based |
ReLAMC |
661 (100%) |
- |
1 year |
Major |
ICD |
- |
- |
https://doi.org/10.26633 /RPSP.2019.44 |
Costa Rica |
Upper-middle |
Costa Rican Birth Defects Register Centre (CREC) |
1985 |
Population-based |
ICBDSR, ReLAMC |
70 (100%) |
Yes |
1 year |
Major and minor |
ICD-BPA |
Live Birth and Stillborn |
Yes |
https://bit.ly/3bPXdWL https://doi.org/10.26633 /RPSP.2019.44 https://doi.org/10.1007/s10995-014-1542-8 |
Cuba |
Upper-middle |
Cuban Register of Congenital Malformation (RECUMAC) |
1985 |
Hospital-based |
ICBDSR, ReLAMC |
120 (100%) |
No |
Hospital discharge |
Major and minor |
ICD-BPA |
Live birth, Stillborn and Termination of pregnancy |
- |
https://doi.org/10.26633 /RPSP.2019.44 http://doi.org/10.26633/RPSP.2017.174 |
Denmark |
High |
Danish Medical Birth Registry |
1973 |
Population-based |
- |
- |
- |
1 year |
- |
ICD |
Live birth, Stillborn and Termination of pregnancy |
- |
https://bit.ly/3quYJ4D https://doi.org/10.1080/ 14034940210134194 https://doi.org/10.3402/ ijch.v68i5.17376 |
The United Arab Emirates |
High |
National Congenital Anomalies Register |
1999 |
Population-based |
- |
63 (100%) |
- |
1 year |
Major |
ICD with modification |
Live Birth and Stillborn |
Yes |
https://bit.ly/39LKphk |
Scotland |
Highb
|
The Scottish Linked Routine Data Congenital Anomaly Register |
2018 |
Population-based |
EUROCAT |
50-55 (100%) |
Hybrid |
1 year |
Major |
ICD |
Live birth, Stillborn and Termination of pregnancy |
- |
https://bit.ly/3oUI0Y1 https://bit.ly/39FYiO5 |
Slovakia |
High |
Teratologic Information Centre, Slovak Medical University |
1964 |
Population-based |
ICBDSR |
55 (100%) |
Yes |
Hospital-based |
- |
- |
Live birth, Stillborn and Termination of pregnancy |
- |
https://bit.ly/2XHWSNm http://dx.doi.org/10.1136/bmjopen-2018-028139 |
Spain |
High |
Spanish Collaborative Study of Congenital Malformations (ECEMC) |
1976 |
Hospital-based |
ICBDSR, EUROCAT |
90 (20%) |
No |
3 days |
Major and minor |
ICD |
Live birth and Stillborn (Termination of pregnancy in some hospitals) |
Yes |
https://bit.ly/3imtzto, https://doi.org/10.2165/00002018-200831060-00008 https://doi.org/10.1016/j.jpedsurg.2008.07.002 |
The United States |
High |
National Birth Defects Prevention Network (NBDPN) |
1997 |
Population-based |
- |
- |
No |
- |
Major |
ICD e CDC/BPA |
Live birth, Stillborn and Termination of pregnancy |
Yes |
https://bit.ly/3sxskMG https://doi.org/10.1002/ bdr2.1607 https://doi.org/ 10.1155/2014/212874 |
Finland |
Alta |
Register of Congenital Malformations |
1963 |
Population-based |
ICBDSR, EUROCAT |
60 (100%) |
Yes |
1 year |
Major |
ICD |
Live birth, Stillborn and Termination of pregnancy |
Yes |
https://bit.ly/3nUTRUH https://bit.ly/2XHWSNm https://doi.org/10.3402/ijch.v68i5.17376 https://doi.org/10.1093/ije/11.3.239 |
Guatemala |
Upper-middle |
Protocolo de Vigilancia de Anomalías Congénitas |
2017 |
Hospital-based |
- |
155 (40%) |
- |
1 month |
Major |
ICD |
- |
Yes |
https://doi.org/10.26633 /RPSP.2019.44 |
Hungary |
High |
Hungarian Congenital Abnormality Registry (HCAR) |
1962 |
Population-based |
ICBDSR, EUROCAT |
100 (100%) |
Yes |
1 year |
Major and minor |
ICD with modification |
Live birth, Stillborn and Termination of Pregnancy |
- |
https://bit.ly/2XHWSNm https://doi.org/10.1111/cga.12025 |
England |
Highb
|
National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) |
2015 |
Population-based |
BINOCAR, ICBDSR |
610 (100%) |
No |
- |
Major and minor |
ICD |
Live birth, Stillborn and Termination of pregnancy |
- |
https://bit.ly/38UlJEb http://dx.doi.org/ 10.1136/archdischild- 2017-312833 |
Iceland |
High |
Icelandic Register of Births |
- |
Base populacional |
- |
- |
- |
- |
- |
ICD |
Live birth and Stillborn |
- |
https://doi.org/10.3402/ijch.v68i5.17376 |
Italy |
High |
Italian Multicenter Register for Congenital Malformations (IPIMC) |
1977 |
Hospital-based |
- |
116 (20%) |
No |
5 days |
Major |
- |
Live birth and Stillborn |
Yes |
http://doi.wiley.com/10.1002/ajmg.1320460425 https://doi.org/10.1007/BF00162315 |
Japan |
High |
Japan Association of Obstetricians and Gynaecologists (JAOG) |
1972 |
Hospital-based |
ICBDSR |
100 (9%) |
- |
7 days |
- |
- |
Live birth and Stillborn |
- |
https://bit.ly/2XTwSyV https://bit.ly/2XHWSNm |
Latvia |
High |
Register of Patients Suffering from Certain Diseases |
1987 |
Population-based |
EUROCAT |
19.2 (100%) |
Yes |
18 years |
- |
- |
Live birth, Stillborn and Termination of pregnancy |
- |
https://bit.ly/3oUI0Y1 https://doi.org/10.1186/s13023-014-0147-z |
Malta |
High |
Malta Congenital Anomalies Register (MCAR) |
1985 |
Population-based |
ICBDSR, EUROCAT |
4 (100%) |
No |
1 year |
Major and minor |
ICD |
Live birth and Stillborn |
- |
https://bit.ly/2XHWSNm https://bit.ly/3oUI0Y1 |
Mexico |
Upper-middle |
Registro y Vigilancia Epidemiológica de Malformaciones Congénitas (RYVEMCE) |
1978 |
Hospital-based |
ICBDSR |
62 (3.5%) |
No |
Hospital discharge |
Major and minor |
- |
Live birth and Stillborn |
Yes |
https://doi.org/10.26633/RPSP.2019.44 https://bit.ly/2XHWSNm https://doi.org/10.1016/j.bmhimx.2017.02.003 https://bit.ly/3qqzz76 |
Norway |
High |
Medical Birth Registry of Norway (MBRN) |
1967 |
Population-based |
ICBDSR, EUROCAT |
60 (100%) |
Yes |
1 year |
- |
ICD-BPA |
Live birth, Stillborn and Termination of pregnancy |
Yes |
https://bit.ly/35OTZyM http://doi.wiley.com/ 10.1034/j.1600-0412. 2000.079006435.x https://doi.org/ 10.1111/dmcn.13552 |
New Zealand |
High |
New Zealand Birth Defects Registry (NZBDR) |
1975 |
Population-based |
ICBDSR |
58 (100%)c
|
Yes |
No time limit |
Major and minor |
- |
Live birth, Stillborn and Termination of pregnancy |
- |
https://bit.ly/2XRvhK4 https://bit.ly/2XHWSNm |
Wales |
Highb
|
Congenital Anomaly Register & Information Service for Wales (CARIS) |
1998 |
Population-based |
BINOCAR, ICBDSR, EUROCAT |
35 (100%) |
No |
1 year |
Major and minor |
ICD |
Live birth, Stillborn and Termination of pregnancy |
- |
https://bit.ly/3nUENXh https://bit.ly/2XHWSNm http://doi.wiley.com/10.1002/bdra.23336 |
Panama |
High |
Programa Nacional de Malformaciones Congénitas de Panama (PNMC) |
- |
- |
ReLAMC |
- |
- |
- |
- |
- |
- |
- |
https://bit.ly/3qyZ7iq |
Paraguay |
Upper-middle |
Programa Nacional de Prevención de Defectos Congénitos del Ministerio de Salud Pública del Paraguay (PNPDC) |
2016 |
Hospital-based |
ReLAMC |
|
Yes |
1 year |
Major and minor |
ICD |
- |
- |
https://bit.ly/3qwW9LG https://bit.ly/3qyZ7iq |
Poland |
High |
Polish Registry of Congenital Malformations (PRCM) |
1997 |
Population- based |
EUROCAT |
300 (85%) |
Yes |
2 years |
Major and minor |
ICD |
Live birth, Stillborn and Termination of pregnancy |
Yes |
https://bit.ly/3oVZp2G https://bit.ly/3oUI0Y1 https://bit.ly/3oWRSAL |
Portugal |
High |
Portuguese national registry of congenital anomalies (RENAC) |
1995 |
Population-based |
EUROCAT |
- |
No |
At the end of the neonatal period |
Major |
ICD |
Live birth, Stillborn and Termination of pregnancy |
Yes |
https://bit.ly/2NgJ7DC http://doi.wiley.com/10.1002/bdra.23530 |
Czech Republic |
High |
National Registry of Congenital Anomalies (NRCA) of the Czech Republic |
1964 |
Population-based |
ICBDSR, EUROCAT |
110 (100%) |
Yes |
15 years |
- |
ICD |
Live birth, Stillborn and Termination of pregnancy |
Yes |
https://bit.ly/35QVI6U https://bit.ly/2XHWSNm https://doi.org/10.21101/cejph.a4201 |
Dominican Republic |
Upper-middle |
Sistema Nacional de Vigilancia Epidemiológica |
2016 |
Hospital-based |
- |
193 (100%) |
- |
Hospital discharge |
Major and minor |
ICD |
- |
- |
https://doi.org/10.26633/RPSP.2019.44 |
Singapore |
High |
National Birth Defects Registry |
1992 |
Population-based |
- |
- |
- |
18 years |
Major and minor |
ICD |
Live birth, Stillborn and Termination of pregnancy |
- |
http://doi.org/10.3389/fped.2014.00060 https://bit.ly/38S57Nk |
Sweden |
High |
Swedish Medical Birth Registry (MBR) |
1964 |
Population-based |
ICBDSR, EUROCAT |
100-120 (100%) |
Yes |
1 year |
- |
ICD |
Live birth, Stillborn and Termination of pregnancy |
Yes |
http://doi.wiley.com/10.1080/ 00016340902934696 http://doi.wiley.com/10.1111/ j.1651-2227.1989.tb11122.x |
Thailand |
Upper-middle |
Thailand Birth Defects Registry |
2014 |
Hospital- based |
SEAR-NBBD |
67 (8.3%) |
- |
1 year |
5 priority typesd
|
ICD |
Live birth |
- |
https://bit.ly/2NgKfqQ https://doi.org/10.1002/ajmg.c.31690 |
Uruguay |
High |
Registro Nacional de Defectos Congénitos y Enfermedades Raras de Uruguay (RNDCER) |
2011 |
Population-based |
ReLAMC |
28 (58%) |
Yes |
6 years |
Major and minor |
ICD |
Live birth, Stillborn and Termination of pregnancy |
Yes |
https://bit.ly/2KumQRM https://doi.org/10.26633/RPSP.2019.44 https://bit.ly/3qyZ7iq |