Argentina |
ICBDSR and ReLAMC |
National Network of Congenital Anomalies of Argentina (RENAC) |
National |
Hospital-based |
ECLAMC |
– |
Subnational |
Hospital-based |
Australia |
ICBDSR |
Western Australian Register of Developmental Anomalies (WARDA) |
Subnational (Western Australia) |
Population-based |
Austria |
EUROCAT |
Styrian Malformation Registry |
Subnational (Styria) |
Population-based |
Bangladesh |
SEAR-NBBD |
– |
Subnational (20 hospitals) |
Hospital-based |
Belgium |
EUROCAT |
– |
Subnational (Antwerp) |
Population-based |
EUROCAT |
– |
Subnational (Hainaut-Namur) |
Population-based |
Bhutan |
SEAR-NBBD |
– |
Subnational (7 hospitals) |
Hospital-based |
Bolivia |
ECLAMC |
– |
Subnational |
Hospital-based |
Brazil |
ECLAMC |
– |
Subnational |
Hospital-based |
Bulgaria |
EUROCAT |
– |
Subnational (Pleven) |
Hospital-based |
Canada |
ICBDSR |
Alberta Congenital Anomalies Surveillance System (ACASS) |
Subnational (Alberta) |
Population-based |
ICBDSR |
Canadian Congenital Anomalies Surveillance Network (CCASS) |
National |
Population-based |
Chile |
ICBDSR and ReLAMC |
Regional Register Congenital Malformational Maule Health Service (RRMC-SSM) |
Subnational (Maule) |
Hospital-based |
ECLAMC |
– |
Subnational |
Hospital-based |
Colombia |
ICBDSR and ReLAMC |
Congenital Malformations Surveillance Programme (CMSP) |
Subnational (Bogota) |
Hospital-based |
ICBDSR and ReLAMC |
Congenital Birth Defects Surveillance Programme (CBDSP) |
Subnational (Cali) |
Hospital-based |
ECLAMC |
– |
Subnational |
Hospital-based |
Costa Rica |
ECLAMC |
– |
Subnational |
Hospital-based |
ICBDSR and ReLAMC |
Costa Rican Birth Defects Register Center (CREC) |
National |
Population-based |
Croatia |
EUROCAT |
– |
Subnational (Zagreb) |
Population-based |
Cuba |
ICBDSR |
Cuban Register of Congenital Malformation (RECUMAC) |
National |
Hospital-based |
Czech Republic |
ICBDSR and EUROCAT |
Czech Republic National Registry of Congenital Anomalies |
National |
Population-based |
Denmark |
EUROCAT |
– |
Subnational (Odense) |
Population-based |
Dominican Republic |
ECLAMC |
– |
Subnational |
Hospital-based |
Ecuador |
ECLAMC |
– |
Subnational |
Hospital-based |
England |
ICBDSR and BINOCAR |
National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) |
National |
– |
EUROCAT and BINOCAR |
East Midlands and South Yorkshire Congenital Anomalies Register (EM&SY CAR) |
Subnational (East Midlands & South Yorkshire) |
Population-based |
EUROCAT and BINOCAR |
Northern Congenital Abnormality Survey (NorCAS) |
Subnational (Northern England) |
Population-based |
EUROCAT and BINOCAR |
South West Congenital Anomaly Register (SWCAR) |
Subnational (Southeast England) |
Population-based |
EUROCAT and BINOCAR |
The Congenital Anomaly Register of Oxfordshire, Berkshire and Buckinghamshire (CAROBB) |
Subnational (Thames Valley) |
Population-based |
EUROCAT and BINOCAR |
The Wessex Antenatally Detected Anomalies Register (WANDA) |
Subnational (Wessex) |
Population-based |
BINOCAR |
West Midlands Congenital Anomaly Register (WMCAR) |
Subnational (West Midlands) |
Population-based |
BINOCAR |
Yorkshire and the Humber Congenital Anomalies Register (YHCAR) |
Subnational (Yorkshire & Humber) |
Population-based |
Finland |
ICBDSR and EUROCAT |
Finnish Register of Congenital Malformations |
National |
Population-based |
France |
EUROCAT |
Centre d’Etude des Malformations Congénitales en Auvergne |
Subnational (Auvergne) |
Population-based |
ICBDSR and EUROCAT |
Registre des Malformations Congénitales de Bretagne |
Subnational (Brittany region) |
Population-based |
EUROCAT |
Registre des Malformations des Antilles |
Subnational (French West Indies) |
– |
France |
EUROCAT |
Registre des Malformations Congénitales de la Reunion |
Subnational (Reunion Island) |
Population-based |
ICBDSR and EUROCAT |
Paris Registry of Congenital Malformations |
Subnational (Paris) |
Population-based |
ICBDSR and EUROCAT |
REMERA |
Subnational (Rhône-Alpes) |
Population-based |
Germany |
EUROCAT |
Birth Registry Mainz Model |
Subnational (Mainz) |
Population-based |
ICBDSR and EUROCAT |
Malformation Monitoring Saxony-Anhalt |
Subnational (Sax-Anh) |
Population-based |
Hungary |
ICBDSR and EUROCAT |
Hungarian Congenital Abnormality Registry (HCAR) |
National |
Population-based |
India |
SEAR-NBBD |
– |
Subnational (76 hospitals) |
Hospital-based |
ICBDSR |
Birth Defects Registry of India (BDRI) |
Subnational (Chennai) |
Hospital-based |
Indonesia |
SEAR-NBBD |
– |
Subnational (34 hospitals) |
Hospital-based |
Iran |
ICBDSR |
Tabriz Registry of Congenital Anomalies (TROCA) |
Subnational (Tabriz) |
Hospital-based |
Ireland |
EUROCAT and BINOCAR |
Cork and Kerry Congenital Anomaly Register |
Subnational (Cork and Kerry) |
Population-based |
EUROCAT and BINOCAR |
South East Congenital Anomaly Register |
Subnational (Southeast Ireland) |
Population-based |
EUROCAT and BINOCAR |
Dublin Congenital Anomaly Register |
Subnational (Dublin) |
Population-based |
Israel |
ICBDSR |
Israel Birth Defects Surveillance Program (IBDSP) |
Subnational (Central District of Israel) |
Hospital-based |
Italy |
EUROCAT |
Congenital Anomalies Registry for the Metropolitan Area of Milan |
Subnational (Metropolitan Area of Milan) |
Population-based |
ICBDSR |
Birth Defects Registry of Campania (BDRCam) |
Subnational (Campania) |
Population-based |
ICBDSR and EUROCAT |
Emilia-Romagna Registry of Congenital Malformations (IMER) |
Subnational (Emilia-Romagna) |
Population-based |
ICBDSR |
Register of Congenital Anomalies of Veneto Region |
Subnational (Veneto) |
– |
ICBDSR and EUROCAT |
Tuscany Registry of Congenital Defects (RTDC) |
Subnational (Tuscany) |
Population-based |
ICBDSR |
Congenital Malformation Registry of Northern Lombardy (RMCL) |
Subnational (Lombardy) |
Population-based |
Japan |
ICBDSR |
Japan Association of Obstetricians and Gynaecologists (JAOG) |
National |
Hospital-based |
Latin America |
ICBDSR and ReLAMC |
Latin American Collaborative Study of Congenital Malformations (ECLAMC) |
Multinational |
Hospital-based |
Maldives |
SEAR-NBBD |
– |
Subnational (12 hospitals) |
Hospital-based |
Malta |
ICBDSR and EUROCAT |
Malta Congenital Anomalies Registry (MCAR) |
National |
Population-based |
Mexico |
ICBDSR |
Mexican Registry and Epidemiological Surveillance of External Congenital Malformations (RYVEMCE) |
National |
Hospital-based |
ICBDSR |
Birth Defects Prevention and Surveillance Programme (BDPSP) |
Subnational (Nuevo León) |
Population-based |
ICBDSR and ReLAMC |
Registro de Defectos Congénitos Hospital Universitario UANL (ReDeCon HU) |
Subnational (Nuevo León) |
– |
Myanmar |
SEAR-NBBD |
– |
Subnational (14 hospitals) |
Hospital-based |
Nepal |
SEAR-NBBD |
– |
Subnational (5 hospitals) |
Hospital-based |
Netherlands |
ICBDSR and EUROCAT |
EUROCAT Registration Northern Netherlands |
Subnational (North Holland) |
Population-based |
New Zealand |
ICBDSR |
New Zealand Birth Defects Monitoring Programme |
National |
Population-based |
Nicaragua |
ReLAMC |
Sistema de Vigilancia de Defectos Congénitos (SVDC UNAN) |
National |
– |
Norway |
ICBDSR and EUROCAT |
Medical Birth Registry of Norway (MBRN) |
National |
Population-based |
Panama |
ReLAMC |
Programa Nacional de Malformaciones Congénitas de Panama (PNMC) |
National |
– |
Paraguay |
ReLAMC |
Programa Nacional de Prevención de Defectos Congénitos del Ministerio de Salud Pública del Paraguay (PNPDC) |
National |
– |
ECLAMC |
– |
Subnational |
Hospital-based |
Peru |
ECLAMC |
– |
Subnational |
Hospital-based |
Poland |
EUROCAT |
– |
Subnational (Wielkopolska) |
Population-based |
EUROCAT |
Polish Registry of Congenital Malformations (PRCM) |
National |
Population-based |
Portugal |
EUROCAT |
– |
Subnational (Southern Portugal) |
Population-based |
Saudi Arabia |
ICBDSR |
Medical Service Department- Birth Defect Registry (MSD-BDR) |
National |
Hospital-based |
Scotland |
BINOCAR |
Glasgow Register of Congenital Anomalies (Glasgow) |
Subnational (Glasgow) |
Population-based |
Slovakia |
ICBDSR |
Programme of Slovak Teratological Information Center (STIC) |
National |
Population-based |
Spain |
ICBDSR and EUROCAT |
Spanish Collaborative Study of Congenital Malformations (ECEMC) |
National |
Hospital-based |
EUROCAT |
Registro Anomalías Congénitas CAPV (RACAV) |
Subnational (Basque Country) |
Population-based |
EUROCAT |
Congenital Anomalies Registry of Navarra (RACEHNA) |
Subnational (Navarra) |
Population-based |
EUROCAT |
Congenital Anomalies Registry of Comunitat Valenciana |
Subnational (Valencia Region) |
Population-based |
Sri Lanka |
SEAR-NBBD |
– |
Subnational (81 hospitals) |
Hospital-based |
Sweden |
ICBDSR and EUROCAT |
Swedish Register of Congenital Malformations |
National |
Population-based |
Switzerland |
EUROCAT |
Registry of Vaud (Switzerland) |
Subnational (Vaud) |
Population-based |
Thailand |
SEAR-NBBD |
– |
Subnational (929 hospitals) |
Hospital-based |
Ukraine |
ICBDSR and EUROCAT |
OMNI-Net Ukraine Birth Defects Program (OMNI-Net) |
Subnational (Northeast Ukraine) |
Population-based |
Uruguay |
ECLAMC |
– |
Subnational |
Hospital-based |
USA |
ICBDSR |
Arkansas Reproductive Health Monitoring System (ARHMS) |
Subnational (Arkansas) |
Population-based |
ICBDSR |
Metropolitan Atlanta Congenital Defects Program (MACDP) |
Subnational (Atlanta) |
Population-based |
ICBDSR |
Iowa Registry for Congenital and Inherited Disorders (IRCID) |
Subnational (Iowa) |
Population-based |
ICBDSR |
Texas Birth Defects Epidemiology and Surveillance Branch (BDES) |
Subnational (Texas) |
Population-based |
ICBDSR |
Utah Birth Defects Network (UBDN) |
Subnational (Utah) |
Population-based |
Venezuela |
ECLAMC |
– |
Subnational |
Hospital-based |
Wales |
ICBDSR, EUROCAT and BINOCAR |
Congenital Anomaly Register and Information Service (CARIS) |
National |
Population-based |