Adapting to (co)exist: experience of men with hemophilia in southern Brazil

Adaptando para (con)vivir: experiencia de hombres con la hemofilia en el sur de Brasil

ABSTRACT

Objective

To understand the experience of men in relation to the process of living with hemophilia.

Method

Qualitative study using the theoretical and methodological referential Symbolic Interactionism and the constructivist strand of Grounded Theory. Participated 12 men with hemophilia followed at a Blood Center in the south of Rio Grande do Sul, Brazil. Intensive interviews, genograms and field notes were used for data collection, with concomitant analysis, following the initial, focused, and theoretical coding stages.

Results

The theoretical model was built, which has as central category Adapting to (co)exist with hemophilia and the categories Knowing yourself and the illness: knowing how to deal, Adjusting life: taking care of yourself and Getting used to the illness: being almost normal.

Conclusion

It was revealed the experience of men who adapt to (co)exist with hemophilia and their actions and behaviors, aiming to preserve them away from bleeding, pain, and the risk of death.

Keywords
Hemophilia A; Hemophilia B; Life change events; Qualitative research; Nursing