Parents’ satisfaction with care in pediatric intensive care units

Cintra, Cintia de Cassia; Garcia, Pedro Celiny Ramos; Brandi, Simone; Crestani, Francielly; Lessa, Alessandra Rodrigues Dias; Cunha, Mariana Lucas da Rocha

doi:10.1590/1983-1447.2022.20210003.en

person Cintia de Cassia Cintra

schoolHospital Israelita Albert Einstein, Gerência de Centro de Terapia Intensiva Pediátrica. Sao Paulo, Sao Paulo, Brazil.

0000-0001-9091-9691

person Pedro Celiny Ramos Garcia

schoolPontifícia Universidade Católica do Rio Grande do Sul (PUCRS), Escola de Medicina, Programa de Pós-Graduação em Pediatria e Saúde da Criança. Porto Alegre, Rio Grande do Sul. Brazil.

0000-0002-1863-0727

person Simone Brandi

schoolHospital Israelita Albert Einstein, Gerência de Centro de Terapia Intensiva Pediátrica. Sao Paulo, Sao Paulo, Brazil.

0000-0002-5564-4861

person Francielly Crestani

schoolPontifícia Universidade Católica do Rio Grande do Sul (PUCRS), Escola de Medicina, Programa de Pós-Graduação em Pediatria e Saúde da Criança. Porto Alegre, Rio Grande do Sul. Brazil.

0000-0001-6196-8582

person Alessandra Rodrigues Dias Lessa

schoolPontifícia Universidade Católica do Rio Grande do Sul (PUCRS), Escola de Medicina, Programa de Pós-Graduação em Pediatria e Saúde da Criança. Porto Alegre, Rio Grande do Sul. Brazil.

0000-0002-1609-8992

person Mariana Lucas da Rocha Cunha

schoolFaculdade Israelita de Ciências da Saúde Albert Einstein, Programa de Mestrado Profissional em Enfermagem. Sao Paulo, Sao Paulo, Brazil.

0000-0002-0768-7971

personCorresponding author: Cintia de Cassia Cintra. Email:
cintia.cintra@einstein.br

Associate editor:

Wiliam Wegner

Editor-in-chief:

Maria da Graça Oliveira Crossetti

groupsAuthorship Contribution:

Conceptualization: Cintia C Cintra, Mariana L R Cunha. Data curation: Cintia C Cintra, Pedro C R Garcia, Mariana L R Cunha. Formal analysis: Cintia C Cintra, Pedro C R Garcia, Francielly Crestani, Mariana L R Cunha. Investigation: Cintia C Cintra, Mariana L R Cunha. Methodology: Cintia C Cintra, Mariana L R Cunha. Project administration: Mariana L R Cunha. Supervision: Pedro C R Garcia, Mariana L R Cunha. Validation: Cintia C Cintra, Pedro C R Garcia, Francielly Crestani, Alessandra D Lessa, Simone Brandi, Mariana L R Cunha. Visualization: Cintia C Cintra, Pedro C R Garcia, Francielly Crestani, Alessandra D Lessa, Simone Brandi, Mariana L R Cunha. Writing - original draft: Cintia C Cintra, Pedro C R Garcia, Mariana L R Cunha. Writing - proofreading and editing: Cintia C Cintra, Pedro C R Garcia, Francielly Crestani, Alessandra D Lessa, Simone Brandi, Mariana L R Cunha.

The authors declare that there is no conflict of interest.

Parents	n (%)
Gender
Female	71 (84.5%)
Male	13 (15.5%)
Age
23 to 32 years old	10 (11.9%)
33 to 42 years old	56 (66.7%)
43 to 52 years old	17 (20.2%)
over 58 years old	1 (1.2%)
Marital status
Single	4 (4.8%)
Married or stable union	77 (91.7%)
Divorced	3 (3.6%)
Relationship with the patient
Mother	71 (84.5%)
Father	13 (15.5%)

Age (months)	n
Mean (DP)	53.9 (61.2)
Median (Q1; Q3)	25.2 (9.6; 96)
Minimum; Maximum	0.0; (204.96)
Gender
Female	44 (52.4%)
Male	40 (47.6%)
Length of hospital stay (days)
Mean (DP)	6.2 (4.1)
Median (Q1; Q3)	5 (3; 7)
Minimum; Maximum	2; 23
Type of disease
Acute	55 (65.5%)
Chronic	29 (34.5%)
Type of treatment
Surgical	19 (22.6%)
PIM (%)
Median (Q1; Q3)	0.8 (0.3; 1.0)
PELOD of admission
Median (Q1; Q3)	0.0 (0.0; 0.0)
Use of mechanical ventilation
No	74 (88.1%)
Yes	10 (11.9%)

Domain scores on the EMPATHIC-30 scale	Number of items	Mean (SD)
Information	5	5.65 (0.54)
Care and cure	8	5.71 (0.48)
Organization	5	5.54 (0.55)
Parent participation	6	5.65 (0.56)
Professional attitude	6	5.85 (0.35)
Total satisfaction items	30	5.75 (0.35)

EMPATHIC-30 scale items	Mean	SD	n
1. We used to talk to the physicians about our child's care and treatment every day	5.90	0.37	84
2. We used to talk to the nurses about our child's care and treatment every day	5.78	0.64	83
3. The physician has clearly informed us about the consequences of our child's treatment	5.69	0.77	81
4. We received clear information about the performance and results of exams and tests	5.52	0.95	83
5. We received understandable information about the effects of medications	5.37	1.09	82
6. Physicians and nurses work together	5.58	0.89	83
7. The medical team prepared us well for our son's discharge	5.70	0.80	70
8. The nurses prepared us well for our son's discharge	5.58	0.97	71
9. The team was alert to the prevention and treatment of our son's pain	5.47	1.04	81
10. Physicians took into account our son's comfort	5.78	0.52	83
11. Nurses took into account our son's comfort	5.62	0.82	84
12. Every day we knew who the physician responsible for our child was	5.54	0.94	84
13. Every day we knew who the nurse responsible for our child was	5.71	0.83	84
14. The team worked efficiently	5.76	0.61	84
15. We could easily get PICU information over the phone when needed	5.59	0.82	63
16. There was enough space around our son's bed	5.55	0.87	83
17. The PICU was clean	5.46	1.01	84
18. The noise in the ICU was muffled as far as possible	5.17	1.36	84
19. During our stay, the team regularly asked how we were feeling	5.20	1.28	84
20. The team actively involved us in decision making about our child's care and treatment	5.59	0.92	82
21. We were encouraged to stay close to our child	5.58	1.02	79
22. We trusted the physicians	5.92	0.32	84
23. We trusted the nurses	5.67	0.68	84
24. We were always able to stay close to our child, even during procedures	5.88	0.50	84
25. We received support from the physicians	5.83	0.49	83
26. We receive support from the nurses	5.78	0.56	83
27. The team worked with hygiene	5.85	0.50	84
28. The team respected our son's privacy and ours	5.80	0.58	83
29. The team showed respect for our son and for us	5.90	0.40	84
30. We were welcomed on our arrival at the ICU	5.90	0.37	84

Domain	n	Length of stay	Admission PIM	PELOD admission
Information	78	0.032 (p=0.784),	-0.041(p=0.724)	-0.036 (p=0.755)
Care and cure	67	-0.101 (p=0.417)	0.071 (p=0.566)	0.063 (p=0.611)
Organization	63	-0.047 (p=0.714),	0.128 (p=0.317)	-0.137 (p=0.285)
Parent participation	77	-0.027 (p=0.816),	0.042 (p=0.717)	0.132 (p=0.253)
Professional attitude	82	0.037 (p=0.744),	0.171 (p=0.124)	0.087 (p=0.437)

[TFN1] Source: Research data, 2019-2020.

Parents’ satisfaction with care in pediatric intensive care units

Satisfacción de los padres respecto a la atención en una unidad de cuidados intensivos pediátricos