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Living with Parkinson's disease from the perspective of parkinsonians and their relatives

The objective of the study was to investigate how it is for the patients and relatives to live with Parkinson's disease. This was a qualitative descriptive study, developed with ten individuals with parkinson´s disease and your relative, concluding twenty informers, by means of semistructured interviews. From the discourse analysis, we verified that in spite of the difficulties, many patients show acceptance or conformity regarding the limitations imposed by the disease, while others still experience anger and hope for a cure. The greatest changes demonstrated by patients and family members are regarding the question of dependence and loss of autonomy for work, daily life and leisure activities, which impact the entire family dynamic. This way, small interventions could contribute to a better coexistence with the disease.

Family; Parkinson disease; Chronic disease; Interpersonal relations; Family nursing


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