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Course for the qualification of nurses in the care of children with genetic diseases: an experience report

Curso de calificación de enfermeras en el cuidado de niños con enfermedades genéticas: informe de experiencia

ABSTRACT

Objective

To describe the experience of developing and operating an extension course to qualify nurses in the care of children with genetic diseases.

Method

An experience report about the conduction of a university extension course with eight participants, developed at a public university in southern Brazil. It was a face-to-face course in November 2019.

Results

The course covered the following themes: introduction to Genetics in Nursing; rare diseases; inborn errors of metabolism; Neonatal Screening Program; and microcephaly. The content was developed through theoretical aspects, presentation of clinical cases, practical activities, and realistic simulation.

Conclusion

The extension course provided knowledge to nurses, who develop their functions as team leaders, enabling professional development and the promotion of information on the topic, which corroborates the objectives of the Nursing Now campaign.

Keywords
Genetic diseases inborn; Pediatrics; Education; Nursing; High fidelity simulation training

Universidade Federal do Rio Grande do Sul. Escola de Enfermagem Rua São Manoel, 963 -Campus da Saúde , 90.620-110 - Porto Alegre - RS - Brasil, Fone: (55 51) 3308-5242 / Fax: (55 51) 3308-5436 - Porto Alegre - RS - Brazil
E-mail: revista@enf.ufrgs.br