Effect of parental mutuality on the quality of life of mothers of children with special health needs

Baldini, Paula Rossi; Lima, Bruna Josiane de; Camilo, Beatriz Helena Naddaf; Pina, Juliana Coelho; Okido, Aline Cristiane Cavicchioli

doi:10.1590/1518-8345.4385.3423

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Revista Latino-Americana de Enfermagem

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Original Article • Rev. Latino-Am. Enfermagem 29 • 2021 • https://doi.org/10.1590/1518-8345.4385.3423 copy

Effect of parental mutuality on the quality of life of mothers of children with special health needs^* * Paper extracted from master’s thesis “Apoio social, mutualidade entre os pais e qualidade de vida relacionada à saúde das cuidadoras de crianças com necessidades especiais de saúde” presented to Universidade Federal de São Carlos, São Carlos, SP, Brazil. This study was financed in part by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - Brasil (CAPES) - Finance Code 001.

Authorship SCIMAGO INSTITUTIONS RANKINGS

Objective:

to analyze the effect of parental mutuality on the quality of life related to the health of mothers who care for children with special health needs.

Method:

an observational, analytical and cross-sectional study with a quantitative approach. The following instruments were applied to 181 caregiving mothers: The Medical Outcomes Study 36-Item Short Form and Family Management Measure (Parental Mutuality subscale). In the statistical analysis, Spearman’s correlation and univariate and multivariate linear regression were used.

Results:

the total score of parental mutuality was 30.8, indicating a satisfactory perception of the caregiving mother about the way the couple shares decisions regarding the care of the child. In the multivariate regression analysis, parental mutuality maintained a statistically significant association with the domains of pain, social aspects and emotional limitations of quality of life related to health (p=<0.001, 0.003, 0.002), respectively.

Conclusion:

parental mutuality has a positive effect on some domains of quality of life related to health. It is recommended to plan actions aimed at strengthening the complicity and connection between the couple, especially in matters related to the care of the child with special health needs.

Descriptors:
Nursing; Child; Mothers; Health-related Quality of Life; Family Relations; Family

QoLRH domains	Mean	S.D.	Min.	Q1	Median	Q3	Max.
Functional capacity	87.5	18.2	10	80	95	100	100
Physical aspects	70.0	39.5	0	50	100	100	100
Pain	66.7	28.2	0	51	72	100	100
General health status	70.1	22.4	5	52	75	92	100
Vitality	53.2	25.0	0	30	55	75	100
Social aspects	76.4	22.6	12.5	62.5	75	100	100
Emotional aspects	56.1	46.2	0	0	66.7	100	100
Mental health	64.8	24.7	0	48	68	84	100
Parental mutuality	30.8	6.82	11	28	33	36	40

		Functional capacity	Physical Limitations	Emotional Limitations	Pain	Mental health	Vitality	Social Aspects	General Health Status
Parental mutuality	r^* * r = Spearman's correlation coefficient; = p^† † p = p-value =	0.15773 0.034	0.20807 0.0049	0.22532 0.0023	0.32222 <0.0001	0.16131 0.0301	0.13225 0.076	0.2646 0.0003	0.16159 0.0298

	Variable	Beta^* * Beta = Regression coefficient; (SE) ^† † SE = Beta Standard Error;	p-value	R2^‡ ‡ R2 = Coefficient of determination. Variables without normal distribution were transformed into posts/ranks
Parental mutuality	Functional capacity	0.15 (0.07)	0.034	0.0249
	Physical Limitations	0.19 (0.07)	0.005	0.0433
	Emotional Limitations	0.21 (0.07)	0.002	0.0508
	Pain	0.32 (0.07)	<0.001	0.1038
	Mental health	0.16 (0.07)	0.030	0.0260
	Vitality	0.13 (0.08)	0.076	0.0175
	Social Aspects	0.26 (0.07)	<0.001	0.0700
	General Health Status	0.16 (0.07)	0.030	0.0261

	Variable	Beta^* * Beta = Regression coefficient; (SE) ^† † SE = Beta standard error;	p-value	R2^‡ ‡ R2 = Coefficient of determination
Parental mutuality	Emotional Limitations	0.21 (0.07)	0,002	0.0508
	Pain	0.26 (0.07)	<0.001	0.1038
	Social Aspects	0.21 (0.07)	0,003	0.0440

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[1] Corresponding author: Aline Cristiane Cavicchioli Okido E-mail: alineokido@ufscar.br https://orcid.org/0000-0003-4309-5612