Understand the daily life of cancer patients in palliative care when experiencing the care of their family at home(99 Wakiuchi J, Salimena AMO, Sales CA. Being cared by a family member: the existential feelings of cancer patients. Texto Contexto Enferm. [Internet]. 2015 [cited May 7, 2019];24(2):381-9. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072015000200381
Available from: http://www.scielo.br/sci...
). |
Patients who received authentic care from their families reflect the impact they had, even in the face of the mishaps that have grown and transcended. Home care, combined with palliative care, is capable of giving "wings" to those who viewed their lives as threatened. |
Understand the meaning of being a caregiver for a family member with cancer and with high dependence for daily activities(1010 Marchi JA, Paula CC, Girardon-Perlini NMO, Sales CA. The meaning of being a caregiver of a dependent relative suffering from cancer: palliative contributions. Texto Contexto Enferm. [Internet]. 2016 [cited May 5, 2019];25(1):e0760014. Available from: http://www.scielo.br/scielo.php?pid=S0104-07072016000100311&script=sci_abstract&tlng=en
http://www.scielo.br/scielo.php?pid=S010...
). |
It meant, for the caregiver, to be terrified with the diagnosis, with the treatment, with palliative care and being-with-the-other in the disease. He showed himself to be busy while remaining concerned and helpful. Palliative care must permeate the nurse's work so that it is a true being-of-care. |
Understand the meanings attributed by health professionals to palliative care assistance in Primary Health Care(1111 Carvalho GAL, Menezes RMP, Enders BC, Teixeira GA, Dantas DNA, Oliveira DRC. Meanings attributed to palliative care by health professional in the primary care context. Texto Contexto Enferm. [Internet]. 2018 [cited May 7, 2019];27(2):e5740016. Available from: http://www.scielo.br/scielo.php?pid=S0104-07072018000200320&script=sci_arttext
http://www.scielo.br/scielo.php?pid=S010...
). |
The professionals recognized the need for the other in palliative care in primary care. The meanings involved the need for a system organized in a network that favors social relations, coping with the curative hospital-centered model and the inclusion and awareness of the family. |
Detect tumor asthenia in Primary Care, evaluation possibilities and its gradation with two proposed scales, the adapted ICD-10 (ICD-10) classification and the graduated Karnosfky index (IK)(1212 Cruz LFC, Estévez MJM, Turiño-Luquec JD. Diagnóstico de la astenia tumoral en Atención Primaria. Propuesta de correlación entre dos escalas. Med Paliat. [Internet]. 2012 [Acceso may 2019];19(1):24-30. Disponible en: http://dx.doi.org/10.1016/j.medipa.2010.09.002
http://dx.doi.org/10.1016/j.medipa.2010....
). |
The study confirmed the existence of a negative correlation or inverse relationship between the degrees of tumor asthenia, according to the diagnostic criteria of ICD-10, for tumor asthenia against IK. Easy and accessible tool in any care environment, including primary and palliative care, not only a functional indicator, but can also assess and grade tumor asthenia. |
To verify the validity and application of a pronounced tool developed in the hospital with biological parameters for its application at home(1313 López AR. Validación de un modelo pronóstico de supervivencia basado en parámetros biológicos para pacientes con cáncer terminal atendidos en ámbito domiciliario. Med Paliat. [Internet]. 2013 [Acceso 5 may 2019];20(1):3-9. Disponible en: http://dx.doi.org/10.1016/j.medipa.2012.01.012
http://dx.doi.org/10.1016/j.medipa.2012....
). |
At home, the routine use of biological parameters of peripheral blood for prognostic purposes is of little use. The use of easily registered variables (clinical symptoms, functional status and aspects related to treatment) can be a more adequate tool to estimate survival in this environment. |
Identify how many patients in the Brazilian FHS program have needs for PC; Describe the health conditions and sociodemographic status of patients in the FHS program with PC needs; Describe the professional and social support received by patients in the FHS program with PC needs(1414 Marcucci FCI. Identification and characteristics of patients with palliative care needs in Brazilian primary care. BMC Palliat Care. [Internet]. 2016 [cited May 10, 2019];15(51):1-10. Available from: http://dx.doi.org/10.1186/s12904-016-0125-4
http://dx.doi.org/10.1186/s12904-016-012...
). |
Patients with PC needs are accessing the FHS program, regardless of whether there is specific support for PC. Of the 238 identified patients, 73 were identified as needing PC, and the average age was 77.18. Most patients received medication and professional support through primary care units, but limitations of services were identified, such as lack of home visits and limited multiprofessional approaches. PC policies and professional training must be implemented to improve this area. |
Determine the frequency of pain as a reason for visiting in a primary care consultation and knowing your influence(1515 Calsina-Berna A, Millán NM, González-Barboteo J, Díaz LS, Sales JP. Prevalencia de dolor como motivo de consulta y su influencia en el sueño: experiencia en un centro de atención primaria. Aten Primaria. [Internet]. 2011 [Acceso 7 may 2019];43(11):568-76. Disponible en: http://dx.doi.org/10.1016/j.aprim.2010.09.006
http://dx.doi.org/10.1016/j.aprim.2010.0...
). |
Average age of 50 years, 56% women. Pain intensity with the VAS scale was 4.9. 45% of patients who met the criteria for "good sleep". In men, acute pain and its intensity appeared as independent factors of bad sleep. |
Develop a new and brief instrument to be employed in dignity measurement, one based on the perceptions of patients, relatives, and professionals about dignity(1616 Rudilla D, Oliver A, Galiana L, Barreto P. A new measure of home care patients’ dignity at the end of life: the palliative patients’dignity scale (PPDS). Palliat Support Care. [Internet]. 2016 [cited May 05, 2019];14:99-108. Available from: http://dx.doi.org/10.1017/S1478951515000747
http://dx.doi.org/10.1017/S1478951515000...
). |
An eight-item questionnaire was presented for validation. The new scale showed appropriate factor validity and reliability. The new PPDS has appropriate psychometric properties that, together with its brevity, encourage its applicability in assessing dignity at the end of life. |
Identify the main limitations and difficulties in accessing socio-health resources that people have lived at the end of life, through the experiences and perceptions of the caregivers of these patients(1717 Ruiz-Fernandéz MD, Ortega-Galán AM, Cabrera-Troya J, Ibáñez-Masero O, Carmona-Rega MI, Relinque-Medina F, et al. Personas enfermas al final de la vida: vivencias en la accesibilidad a recursos sociosanitarios. Enfermería Universitaria. [Internet]. 2017 [cited May 07, 2019];14(1):10-8. Available from: http://dx.doi.org/10.1016/j.reu.2016.11.004
http://dx.doi.org/10.1016/j.reu.2016.11....
). |
Categories: food, emergency services, need for privacy, feeling of solidity and experience at home. Obstacles: care protocols that do not arise in the family process or adoration process and the need for an individualized room in the hospital. At home, they are protected by the profession of basic care, but they present difficulties, not access to psychological support and palliative care units. |
Analyze the work process of health professionals who work in Family Health / Primary Care and have already taken care of people in the process of dying in order to outline possible contributions to the area of Public Health with regard to the implementation of palliative care in Attention Primary(1818 Combinato DS, Martins STF. (Pleading for) palliative care in primary health care. Mundo Saúde. [Internet]. 2018 [cited May 05, 2019];36(3):433-44. Available from: http://bvsms.saude.gov.br/bvs/artigos/mundo_saude/defesa_cuidados_paliativos_atencao_primaria.pdf
http://bvsms.saude.gov.br/bvs/artigos/mu...
). |
The planning of health actions is guided by the Singular Therapeutic Project, with an emphasis on social diagnosis and the need for a bond to agree. It is understood that the purpose of this activity of the health professional is to promote dignity and quality of life in the death process, however, it is argued that comprehensive care must include, in addition to the care of the person and his family, the defense of full human development. |
Reflect on the care of people with terminal illnesses in Primary Health Care (PHC)(1919 Queiroz AHAB, Pontes RJS, Souza AMA, Rodrigues TB. Perception of family members and health professionals on end of life care within the scope of primary health care. Ciênc Saúde Coletiva. [Internet]. 2013 [cited May 07, 2019];18(9):2615-23. Available from: http://dx.doi.org/10.1590/S1413-81232013000900016
http://dx.doi.org/10.1590/S1413-81232013...
). |
Categories: care at the end of life in the perception of family members and health professionals. Despite the humanization discourse, care was discontinued. Apart from large centers, there is little improvement in the quality of life of those who die at home. |
To know and reflect on the perspectives of occupational therapists in relation to
implementation of palliative care in home care(2020 Portela SG, Galheigo SM. Palliative care in home care: perceptions of ocupational therapists. Cad Ter Ocup. [Internet]. 2015 [cited May 07, 2019];23(1):15-29. Available from: https://www.researchgate.net/publication/307842167_Palliative_care_in_home_care_perceptions_of_occupational_therapists
https://www.researchgate.net/publication...
). |
Professional performance in palliative care concentrated at specialized levels, but with power in primary and home care. Barriers: complexity of "being at home", high cost demands, lack of infrastructure and the failure to implement public policies. Insufficient professional training and scientific production. |
Identify cases of users in order to inventory the ethical problems that the team experiences(2121 Souza HL, Zoboli ELCP, Paz CRP, Schveitzer MC, Hohl KG, Pessalacia JDR. Palliative care in primary health care: ethical considerations. Rev Bioét. [Internet]. 2015 [cited May 07, 2019];23(2):349-59. Available from: http://dx.doi.org/10.1590/1983-80422015232074
http://dx.doi.org/10.1590/1983-804220152...
). |
The training of human resources with technical competence and the continuity of assistance in the transition from curative to palliative treatment favors comprehensiveness and obtaining more appropriate responses to ethical challenges. It is concerned with the identification of the values underlying the specific needs of the end of life and with a multidisciplinary approach. |
Assess the need for incorporation of palliative care in primary health care through the characterization of users eligible for this type of care, enrolled in a program for devices dispensing(2222 Paz CRP, Pessalacia JDR, Zoboli ELCP, Souza HL, Granja GF, Schveitzer MC. New demands for primary health care in Brazil: palliative care. Invest Educ Enferm. [Internet]. 2016 [cited May 05, 2019];34(1):46-57. Available from: http://dx.doi.org/10.17533/udea.iee.v34n1a06
http://dx.doi.org/10.17533/udea.iee.v34n...
). |
141 of the 160 selected medical records had KPS information. Most cases performed below 70% and, therefore, patients were eligible for palliative care. The most frequent pathologies are chronic degenerative diseases. |
Analyze the comfort of formal and informal caregivers of patients in palliative care, identifying the variables associated with difficulties in home care(2323 Meneguin S, Ribeiro R, Ferreira MLSM. Conforto de cuidadores formais e informais de pacientes em cuidados paliativos na atenção primária à saúde. Rev Rene. [Internet]. 2016 [Acesso 10 mai 2019];17(6):797-803. Disponível em: http://dx.doi.org/10.15253/2175-6783.2016000600010
http://dx.doi.org/10.15253/2175-6783.201...
). |
Most caregivers were women, average age 52 years old, with companions and practitioners of some religion. The comfort level of caregivers of patients in palliative care was relatively good and was associated with difficulties in home care. |
Identify patients eligible for palliative care and characterize the services involved in Primary Health Care(2424 Azevedo C, Rates CMP, Pessalacia JDR, Mata LRF. Perspectivas para os cuidados paliativos na atenção primária à saúde: estudo descritivo. Online Braz J Nurs. [Internet]. 2016 [Acesso mai 2019];15(4):683-93. Disponível em: http://dx.doi.org/10.17665/1676-4285.20165370
http://dx.doi.org/10.17665/1676-4285.201...
). |
It is reported that 2715 are eligible, representing 3.59% of the registered population; cardiovascular diseases, diabetes and cancer; 17.2% required early palliative care; 9.7%, exclusive. Need to structure PHC for early palliative care, focusing on the elderly. |
To analyze the relationship between social support, quality of life and depression in patients eligible for palliative care seen at PHC in a municipality in the interior of Minas Gerais, Brazil(2525 Azevedo C, Pessalacia JDR, Mata LRF, Zoboli ELCP, Pereira MG. Interface between social support, quality of life and depression in users eligible for palliative care. Rev Esc Enferm USP. [Internet]. 2017 [cited May 7, 2019];28(51):e03245. Available from: http://dx.doi.org/10.1590/S1980-220X2016038003245
http://dx.doi.org/10.1590/S1980-220X2016...
). |
Higher levels of social support are related to patients with better overall and functional quality of life. On the other hand, lower levels of quality of life due to the presence of physical symptoms are related to worse levels of social support, and a worse overall quality of life is related to higher levels of symptoms of depression. |
To present the process of identification of palliative care patients in a Family Health Strategy´s team in Brazil(2626 Corrêa SR, Mazuko C, Mitchell G, Pastrana T, Lima L, Murray SA. Identifying patients for palliative care in primary care in Brazil: Project Estar ao Seu Lado’s experience. Rev Bras Med Fam Comunidade. [Internet]. 2017 [cited May 7, 2019];12(39):1-8. Available from: http://dx.doi.org/10.5712/rbmfc12(39)1507
http://dx.doi.org/10.5712/rbmfc12(39)150...
). |
38 people with palliative needs were identified out of a population of 3,000; 58% are women; 63% are over 65 years old. There is greater multimorbidity over 65 years. Cardiovascular, respiratory, psychiatric, cancer and Diabetes Mellitus are prevalent. |
