Burden and participation of family in the care of Psychosocial Care Centers users

'Family burden' is the impact that may result in the family environment from the care devoted to a patient. The aim of this paper was to investigate the burden experienced by family caregivers of users assisted in Psychosocial Care Centers. For this purpose, we have applied the Family Burden Interview Scale for Relatives of Psychiatric Patients - BR and a socio-demographic questionnaire. The results indicate a relevant presence of burden in the analyzed families and the importance of the involvement of relatives in the care of people with mental disorders. It was also possible to register that cooperation with families in the work conducted by psychosocial care services is still incipient.

KEYWORDS:
Caregivers; Mental health services; Family health; Mental disorders; Community psychiatry.

Authorship

Thaíssa Lima dos Reis

Universidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. psireis@yahoo.com.brUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. psireis@yahoo.com.brUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. psireis@yahoo.com.br

Catarina Magalhães Dahl

Universidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. catdahl@hotmail.comUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. catdahl@hotmail.comUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. catdahl@hotmail.com

Silvia Monnerat Barbosa

Universidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. silviamonnerat@yahoo.com.brUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. silviamonnerat@yahoo.com.brUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. silviamonnerat@yahoo.com.br

Melissa Ribeiro Teixeira

Universidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. melissartos@gmail.comUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. melissartos@gmail.comUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. melissartos@gmail.com

Pedro Gabriel Godinho Delgado

Universidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. p.g.godinhodelgado@gmail.comUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. p.g.godinhodelgado@gmail.comUniversidade Federal do Rio de Janeiro (UFRJ), Instituto de Psiquiatria, Núcleo de Pesquisa em Políticas Públicas de Saúde Mental - Rio de Janeiro (RJ), Brasil. p.g.godinhodelgado@gmail.com

Conflict of interests: non-existent

SCIMAGO INSTITUTIONS RANKINGS

Tables

Tables (3)

Thumbnail

Table 1
Socio-demographic characteristics of family

Thumbnail

Table 2
Objective family burden

Thumbnail

Table 3
Subjective family burden

Table 1 Socio-demographic characteristics of family

Variables		Frequency	%
Gender	Female	86	80,00
Gender	Male	21	20,00
Age range	21-40 years	8	7,48
	41-60 years	67	62,62
	61-80 years	31	28,97
	81-100 years	1	0,93
Kinship status	Mother	47	43,93
	Father	11	10,28
	Sister or brother	33	30,84
	Daughter or son	1	0,93
	Other	15	14,02
Civil status	Married/living with someone	50	46,73
	Widow/widower	21	19,63
	Single	20	18,69
	Separated or divorced	16	14,95
Education	Illiterate	3	2,80
	01 to 04 years	12	11,21
	05 to 08 years	35	32,71
	09 to 12 years	34	31,78
	13 to 16 years	10	9,35
	17 or over	4	3,74
	Doesn't know	2	1,87
	Not answered	7	6,54
Living with patient	Yes	62	57,94
	No	28	26,17
	Not answered	17	15,89
Residence	Own	90	84,11
	Other kind	15	14,02
	Not answered	2	1,87
Family income	No income	1	0,93
	Less than 1 minimum salary	23	21,50
Family income	01 to 02 minimum salaries	28	26,17
	02 to 04 minimum salaries	39	36,45
	Over 04 minimum salaries	14	13,08
	Not answered	1	0,93
	Not known	1	0,93
Patient's benefit	Receives	56	52,34
	Does not receive	44	41,12
	Not answered	7	6,54
Professional status	Retired	23	21,50
	Employed	39	36,45
	Unemployed	40	37,38
	Not answered	5	4,67
Religion	Catholic	29	27,10
	Evangelic protestant / Pentecostal	63	58,88
	Spiritualist	3	2,80
	No religion	7	6,54
	Not answered	5	4,67
Importance of religion	None	2	1,87
	Small	2	1,87
	Moderate	15	14,02
	Very important	81	75,70
	Not answered	7	6,54

Source: The authors.

Table 2 Objective family burden

Subscales	Items	Answers 1 and 2*	Answer 3**	Answers 4 and 5***	Not answered
A. Assistance in daily life	Hygiene	37,38%	8,41%	54,21%	0,00%
	Medication	35,51%	4,67%	58,88%	0,93%
	Housework	29,91%	14,95%	54,21%	0,93%
	Shopping	47,66%	17,76%	31,78%	2,80%
	Meals	19,63%	8,41%	68,22%	3,74%
	Transport	40,19%	26,17%	31,78%	1,87%
	Money	52,34%	5,61%	40,19%	1,87%
	Time use	27,11%	21,50%	51,40%	0,00%
	Medical consultation	46,83%	23,36%	29,91%	0,00%
B. Supervision of problematic behavior	Problematic behavior	54,21%	19,62%	26,17%	0,00%
	Demand excessive attention	43,93%	18,89%	39,25%	0,93%
	Night disturbance	71,96%	5,61%	21,50%	0,93%
	Hetero-aggression	80,38%	6,54%	13,08%	0,00%
	Auto-aggression (suicidal ideation)	91,59%	4,67%	3,74%	0,00%
	Excessive drinking	90,65%	3,74%	2,80%	2,80%
	xcessive smoking or drinking (Non-alcoholic beverage)	33,64%	22,43%	43,93%	0,00%
	Drugs use	94,39%	1,87%	2,80%	0,93%
D. Impact on caregiver's daily routine	Being delayed or missing appointments	69,16%	18,69%	11,22%	0,93%
	Changes in caregiver's leisure	67,29%	10,28%	22,43%	0,00%
	Changes in household work/routine	60,75%	14,95%	24,30%	0,00%
	Reduction of care to other family members	60,75%	12,15%	27,10%	0,00%

Source: The authors.
* 1 e 2: Never / less than once a week.
** 3: Once or twice a week.
*** 4 e 5: From three to six times a week.

Table 3 Subjective family burden

Subscales	Items	Answers 1 and 2*	Answers 3 and 4 or 3**	Answers 4 and 5***	No changes	Not answered
A: Assistance in daily life	Hygiene	31,78%	36,45%	-	-	31,78%
	Medication	38,32%	31,78%	-	-	29,91%
	Housework	28,97%	45,80%	-	-	25,23%
	Shopping	37,38%	24,30%	-	-	38,32%
	Meals	63,55%	15,89%	-	-	20,56%
	Transport	47,66%	22,43%	-	-	29,91%
	Money	28,97%	25,23%	-	-	45,79%
	Time use	35,51%	42,99%	-	-	21,50%
	Medical consultation	34,58%	31,78%	-	-	33,64%
B: Supervision of problematic behavior	Problematic behavior	9,35%	28,04%	-	-	39,25%
	Demand excessive attention	21,50%	43,92%	-	-	34,58%
	Night disturbance	8,41%	37,78%	-	-	59,81%
	Hetero-aggression	8,41%	28,04%	-	-	63,55%
	Auto-aggression (suicidal ideation)	4,67%	16,82%	-	-	78,50%
	Excessive drinking	0	10,28%	-	-	89,72%
	Excessive smoking or drinking (Non-alcoholic beverage)	19,69%	49,53%	-	-	31,78%
	Drugs use	0	5,61%	-	-	94,39%
C: Expenses	Weight of expenses with patient	46,73%	21,50%	29,91%	-	1,87%
D: Impact on caregiver's daily routine	D2: Permanent impact on caregiver's life	8,41%	80,37%	-	9,35%	1,87%
E: Worries about the patient	Physical safety	9,35%	6,54%	84,11%	-	0,00%
	Quality of treatment	42,99%	18,69%	38,32%	-	0,00%
	Social life	22,43%	16,82%	60,75%	-	0,00%
	Health	11,21%	15,89%	71,96%	-	0,93%
	Residence	44,86%	10,28%	43,93%	-	0,93%
	Finances	23,36%	9,35%	67,29%	-	0,00%
	Future	5,61%	8,41%	85,89%	-	0,00%

Source: The authors.
*For subscales A and B: 1 - Not at all / 2 - very little; when answer 1 is marked on objective burden scale, the same item should not be answered on subjective burden scale. For subscales C and E: 1 - Never / 2 - Seldom. For subscale D: 1 - Not once / 2 - Less than once a week.
**For subscales A, B and D: 3 - A little / 4 - Very much. For subscale C: 3 - Sometimes.
*** For subscales C and E: 4 - Frequently / 5 - Always or almost always.

How to cite

copy

Centro Brasileiro de Estudos de Saúde Av. Brasil, 4036, sala 802, 21040-361 Rio de Janeiro - RJ Brasil, Tel. 55 21-3882-9140, Fax.55 21-2260-3782 - Rio de Janeiro - RJ - Brazil
E-mail: revista@saudeemdebate.org.br

Acompanhe os números deste periódico no seu leitor de RSS

Versão para download de PDF

PDF

Português
Inglês

Versões e tradução automática

Versão original do texto

English
Português

Tradução automática

Google Translator
Microsoft Translator

Como citar

RIS

BIBTEX

Outros formatos de citação e exportação:

SciELO - Scientific Electronic Library Online
Rua Dr. Diogo de Faria, 1087 – 9º andar – Vila Clementino 04037-003 São Paulo/SP - Brasil
E-mail: scielo@scielo.org

Leia a Declaração de Acesso Aberto

Métricas

Burden and participation of family in the care of Psychosocial Care Centers users

PlumX

Mensagem

[1] Conflict of interests: non-existent