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Translation and cultural adaptation of the Positive Aspects of Caregiving Scale for caregivers of people living with dementia in Brazilian context: a methodological study

ABSTRACT

BACKGROUND:

The Positive Aspects of Caregiving (PAC) scale is used to assess psychosocial benefits provided to caregivers by the task of caring. The PAC scale consists of nine items, assessed using a five-point Likert scale, with higher values indicating greater positive perceptions and gains from the caregiving experience.

OBJECTIVE:

To translate and culturally adapt the PAC scale for informal Brazilian caregivers of people with dementia.

DESIGN AND SETTING:

A methodological study was conducted at the Federal University of São Carlos.

METHODS:

The following stages were carried out: Translation; Synthesis of the translations; Back-translation; Evaluation by an experts’ committee; and Pre-test.

RESULTS:

Two independent professionals translated the PAC scale. The consensus version was obtained by merging both translations, which were back-translated into English by a third translator. The expert committee comprised three specialists in the area and project researchers. All scale items presented a Content Validity Index of 1 (CVI = 1.0), and thus remained in the pre-final version of the instrument. The instrument was pre-tested with seven caregivers of people with dementia, the majority of whom were women (57.1%), with a degree of kinship corresponding to sons/daughters (57.1%) and an average age of 55.2 (± 4.1) years. The caregivers considered it clear and understandable and made no suggestions for changes.

CONCLUSION:

The PAC scale was translated and culturally adapted for use by informal caregivers of people with dementia in Brazil. However, a psychometric analysis of the instrument is necessary to provide normative data for this population group.

KEYWORDS (MeSH terms):
Dementia; Caregivers; Transcultural study; Mental health

AUTHOR KEYWORDS:
Caregivers; Positive aspects of caregiving; Adaptation of instruments; Major neurocognitive disorder; Family caregiver

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