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Oral history of women with children with Down Syndrome

This study sought to learn about and better understand the social construction process of the identity for mothers of children with Down Syndrome. This is a case study called oral history, conducted with three women through semi-structured interviews in September of 2007. In the thematic content analysis, seven categories emerged: Discovery, Needs, Problems, Lack of guidance, Information about Down Syndrome, Prejudice and Beliefs, Religiousness, and Faith. Two sub-categories emerged in the Discovery category, denominated Feelings and Positive and Negative Demonstrations. The negative emotional impact emerged strongly upon discovering the condition of the newborn child; but later there arose a conformism of the situation, leading the mother to experiment ambivalent feelings. It is believed that orientation constitutes the first step in overcoming the new life situation of these women; however, this study demonstrated the shortage of this resource among professionals and health care services.

Oral history; Down Syndrome; Nursing


Universidade Federal de Santa Catarina, Programa de Pós Graduação em Enfermagem Campus Universitário Trindade, 88040-970 Florianópolis - Santa Catarina - Brasil, Tel.: (55 48) 3721-4915 / (55 48) 3721-9043 - Florianópolis - SC - Brazil
E-mail: textoecontexto@contato.ufsc.br