SciELO - Scientific Electronic Library Online

 
vol.19 número4Tendência da mortalidade infantil e dos neonatos menores de 32 semanas e de muito baixo pesoAcessibilidade ao tratamento de tuberculose: avaliação de desempenho de serviços de saúde índice de autoresíndice de assuntospesquisa de artigos
Home Pagelista alfabética de periódicos  

Serviços Personalizados

Journal

Artigo

Indicadores

Links relacionados

Compartilhar


Revista Latino-Americana de Enfermagem

versão On-line ISSN 1518-8345

Resumo

NUNES, Michelle Darezzo Rodrigues  e  DUPAS, Giselle. Independence of children with Down syndrome: the experiences of families. Rev. Latino-Am. Enfermagem [online]. 2011, vol.19, n.4, pp.985-993. ISSN 1518-8345.  http://dx.doi.org/10.1590/S0104-11692011000400018.

This study develops a theoretical model concerning the experience of families of children with Down syndrome in preschool and school age. The frameworks used were Symbolic Interactionism and Grounded Theory. Semi-structured interviews were used as the instrument of investigation and ten families participated in the study. The Theoretical Model "Seeking the child's independence and autonomy through constant stimulation" was identified, which shows the family's efforts to enable the child to develop the best s/he can through stimulation in order to become less dependent in the future. This model can be used to facilitate interaction with the family and can be further expanded. Nurses should use spaces dedicated to care delivery to establish bonds with the family, and seek other spaces families frequent, to better meet their needs, since there are significant gaps in care and research addressing this population. Instead, they should be welcomed and seen as a partner in care delivery.

Palavras-chave : Down Syndrome; Family Nursing; Pediatric Nursing.

        · resumo em Português | Espanhol     · texto em Inglês     · Português ( pdf ) | Inglês ( pdf ) | Espanhol ( pdf )

 

Creative Commons License Todo o conteúdo deste periódico, exceto onde está identificado, está licenciado sob uma Licença Creative Commons