Describe how individuals with SCI control their life and find positive meaning and continuity despite their injury, managing social participation and social relationships(2424 Ide-Okoche A, Yamazaki Y, Tadaka E, Fujimura K, Kusunaga T. Illness experience of adults with cervical spinal cord injury in Japan: a qualitative investigation. BMC Public Health [Internet]. 2013 [cited 2018 Apr 10];13(69):2-10. Available from: https://doi.org/10.1186/1471-2458-13-69
https://doi.org/10.1186/1471-2458-13-69...
)
|
Japan |
29 individuals with SCI (C1 to C6) Mean age: 48.1 years Males and females |
Descriptive study |
Through self-help groups, participants gave priority to activities aimed at setting new social goals after the injury. Social participation was sought by individuals with SCI to transcend the limitations of disability. |
Investigate how individuals with SCI describe their local community(2525 Kuipers P, Kendall MB, Amster D, Pershouse K, Schuurs S. Descriptions of community by people with spinal cord injuries: concepts to inform community integration and community rehabilitation. Int J Rehabil Res [Internet]. 2011 [cited 2018 Apr 10];34(2):167-74. Available from: http://dx.doi.org/10.1097/MRR.0b013e3283460e39
http://dx.doi.org/10.1097/MRR.0b013e3283...
)
|
Australia |
269 individuals with SCI (C1 to S5) 15-55 years Men and women |
Descriptive study |
The community was described as a 'place'. The participants highlighted positive points (social and relationship aspects) and negative points (related to physical space and accessibility). |
Explore "person perceived participation" in individuals with SCI(2626 Van de Velde D, Bracke P, Hove G, Josephsson S, Vanderstraeten G. Perceived participation, experiences from persons with spinal cord injury in their transition period from hospital to home. Int J Rehabil Res [Internet]. 2010 [cited 2018 Apr 10];33(4):346-55. Available from: http://dx.doi.org/10.1097/MRR.0b013e32833cdf2a
http://dx.doi.org/10.1097/MRR.0b013e3283...
)
|
Belgian |
11 individuals with SCI (T6 to T12) 25-56 anos Men |
Descriptive study |
Participation was conceptualized as a set of values, including freedom to carry out activities, to act according to the person's identity, to experience personal growth, to experience trust and security, to feel validated, to have a sense of control, to experience a sense of importance and to find equal identities. |
To examine the change in life satisfaction over time and potential contributing factors among adults with pediatric-onset spinal SCI(2727 Chen Y, Anderson CJ, Vogel LC, Chlan KM, Betz RR, Craig MM. Change in life satisfaction of adults with pediatric-onset spinal cord injury. Arch Phys Med Rehabil [Internet]. 2008 [cited 2018 Apr 10];89(12):2285-92. Available from: https://doi.org/10.1016/j.apmr.2008.06.008
https://doi.org/10.1016/j.apmr.2008.06.0...
)
|
United States |
605 individuals with SCI (C1 to T5) 24-37 years Men and womena |
Prospective longitudinal study. |
After adjusting for potential confounding factors related to SCI, life satisfaction was higher for women and those who were married/living with a partner; were employed/students; did not use illicit drugs; were more independent; had better mental health and better social integration. |
To gain an understanding of how women with SCI experienced human encounters in occupations and how these influenced their participation(2828 Isaksson G, Josephsson S, Lexell J, Skär L. To regain participation in occupations through human encounters - narratives from women with spinal cord injury. Disabil Rehabil [Internet]. 2007 [cited 2018 Apr 10];29(22):1679-88. Available from: http://dx.doi.org/10.1080/09638280601056061
http://dx.doi.org/10.1080/09638280601056...
)
|
Sweden |
13 individuals with SCI 25-61 years Females |
Descriptive study |
Women struggled with conflicts, supported other persons that were insecure and revaluated their apprehension about persons in their social network. Their experiences with human encounters changed over time and enabled them to regain participation in occupations. |
To examine unmet needs related to quality of life and social participation after spinal cord injury across four European countries(2929 Kennedy P, Lude P, Taylor N. Quality of life, social participation, appraisals and coping post spinal cord injury: a review of four community samples. Spinal Cord. 2006;44(2):95-105. Available from: doi:10.1038/sj.sc.3101787 https://doi.org/10.1038/sj.sc.3101787...
)
|
United Kingdon |
1000 individuals with SCI (C1 to S5) 48-49 years Men and women |
Cross-sectional study |
Quality of life and social participation are long-term processes in which occupation, sexual activity and pain relief are the least met needs among patients with SCI. |
To discuss the concept of autonomy as a precursor for participation in individuals with SCI(3030 Van de Velde D, Bracke P, Hove G, Josephsson S, Devisch I, Vanderstraeten G. The illusion and the paradox of being autonomous, experiences from persons with spinal cord injury in their transition period from hospital to home. Disability & Rehabilitation [Internet]. 2011 [cited 2018 Apr 10];34(6):491-502. Available from: http://dx.doi.org/10.3109/09638288.2011.608149
http://dx.doi.org/10.3109/09638288.2011....
)
|
Belgium |
11 individuals with SCI (T6 to T12) 25-56 years Men |
Descriptive study |
Autonomy and independence can be considered prerequisites for participation. |
To determine factors that contribute and predict social participation following discharge of the patient with SCI (3131 Craig A, Nicholson PK, Guest R, Tran Y, Middleton J. Adjustment following chronic spinal cord injury: Determining factors that contribute to social participation. Br J Health Psychol [Internet]. 2015 [cited 2018 Apr 10];20(4):807-23. Available from: https://doi.org/10.1111/bjhp.12143
https://doi.org/10.1111/bjhp.12143...
)
|
Australia |
71 individuals with SCI (C1 to S5) Mean: 42.6 years Men and women |
Prospective longitudinal study |
Factors that predicted social participation and autonomy: younger age, having a higher cognitive capacity. Factors that did not predict participation: low perceived self-efficacy, pain and alcohol use. |
To understand how adults with SCI participate in their daily life and within their communities, to promote opportunity for participation(3232 Ripat JD, Woodgate RL. Self-perceived participation among adults with spinal cord injury: a grounded theory study. Spinal Cord. 2012;50(12):908-14. doi:10.1038/sc.2012.77 https://doi.org/10.1038/sc.2012.77...
)
|
Canada |
19 individuals with SCI (C1 to C8) Age: ≥ 20 years Men |
Descriptive study |
The participants live in a changed world, one that is perceived differently after SCI, and use various strategies to interact within their environment and to participate |