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Escola Anna Nery

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GAIVA, Maria Aparecida Munhoz; NEVES, Ádila de Queiroz  and  SIQUEIRA, Fabíola Mara Gonçalves de. The care of children with spina bifida in the family home. Esc. Anna Nery [online]. 2009, vol.13, n.4, pp.717-725. ISSN 1414-8145.

This study aimed to describe the experience of families who have children with spina bifida in the daily care. We conducted a study of qualitative approach, employing to collect data on semi-structured interviews with 09 families. Data analysis was developed with support in the method of thematic analysis. The results showed, understand the impact of malformation of the child on the family and the difficulties to provide the daily care for the child. The study also highlights the need of health professionals and nursing think new models of care that are focused on the needs of the family, not only in the pathological process of the child.

Keywords : Meningomyelocele; Child Care; Disabled Children; Family.

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