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Vulnerability of Children with Special Health Needs: implications for nursing

ABSTRACT

The objective of the study was to describe and analyze the social and clinical profile of Children with Special Health Needs hospitalized in the pediatric wards of a maternal-infant hospital in the Federal District. This is a cross-sectional, quantitative survey carried out with 120 children and their family members/main caregivers. A structured questionnaire with 26 items was used, which later went through a descriptive and inferential analysis of the data. The results point to the mother as the main family member/caregiver (92.5%), with a medium level of education (58.3%). The children were mostly male (63%), with congenital malformations, deformities, and chromosomal anomalies (29.1%). There was a positive correlation between family/caregiver education and need for hospitalization in the Intensive Care Unit (P-Value<0.01) and the number of hospitalizations in the last 12 months with technological care demands (P-Value<.01). Thus, the social vulnerability of families and the need for health education strategies focused on the demands of technological care were also identified.

KEYWORDS
Health profile; Child health; Children with disabilities; Caregivers; Pediatric nursing

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